At nine months of existence, ALSUntangled has 103 followers on Twitter, 50 ALS clinician-scientists from across four countries in our NING, and 22 discussions underway. New discussions since the last update include stem cell transplants in Monterrey Mexico, stem cell transplants at Cell Medicine, and cyclosporine for ALS.

At the request of PALS, we recently reviewed the option of stem cell transplants at the Hospital San Jose Tecnologico de Monterrey. This procedure and its costs (a minimum of $18,000 plus travel per patient) are detailed on the web. Unlike most clinics currently offering stem cell transplants out- side of a trial, this group has published its initial experience in a scientific journal. Here we analyze this publication, and detail our own patients’ experiences with this option.

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PatientsLikeMe Chairman Jamie Heywood presented some experimental new features on the site at the prestigious TEDMED conference last fall; click here to watch the video of his inspiring and insightful presentation to a global audience of scientists, industry leaders, and researchers.

The ALS Therapy Development Institute (ALS TDI) announced today that it is supporting a new awareness campaign driven by several ALS patients diagnosed with the progressive neurodegenerative disease commonly known as Lou Gehrig’s disease before the age of 30.  This campaign, called ‘Young Faces of ALS’, is designed and led by a group of seven young men and women and will consist of a group effort to visit each of the 30 Major League Baseball (MLB) parks during the 2010 baseball season.

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