Thinking of Rich on His Birthday…

All I Know*

When the singer’s gone
Let the song go on
It’s a fine line between the darkness and the dawn
They say in the darkest night
There’s a light beyond

But the ending always comes at last
Endings always come too fast
They come too fast, but they pass too slow
I love you, and that’s all I know

For Rich With Love

* Lyrics by Jimmy Webb / Vocals Art Garfunkel

Steve Saling – In His Own Words

Concussions Linked to Condition Similar to ALS

Study Shows Repeated Head Traumas May Raise Risk of Symptoms Seen in Lou Gehrig’s Disease

Did Lou Gehrig Have Lou Gehrig’s Disease?

The new findings suggest that professional baseball player Lou Gehrig may not have died from Lou Gehrig’s disease.

“Maybe Lou Gehrig had chronic traumatic encephalopathy,” Cantu says. He sustained at least five documented concussions during his career. In addition, there are reports that he was knocked unconscious for five minutes after being struck in the head with a ball. He also played football at Columbia University before joining the New York Yankees.

Click here to read the entire article.

Jamie Heywood: The big idea my brother inspired

PatientsLikeMe Chairman Jamie Heywood presented some experimental new features on the site at the prestigious TEDMED conference last fall; click here to watch the video of his inspiring and insightful presentation to a global audience of scientists, industry leaders, and researchers.

Young ALS Patients Come Together to End ALS with New National Campaign

The ALS Therapy Development Institute (ALS TDI) announced today that it is supporting a new awareness campaign driven by several ALS patients diagnosed with the progressive neurodegenerative disease commonly known as Lou Gehrig’s disease before the age of 30.  This campaign, called ‘Young Faces of ALS’, is designed and led by a group of seven young men and women and will consist of a group effort to visit each of the 30 Major League Baseball (MLB) parks during the 2010 baseball season.

Click here to read the rest of this inspiring article.

Au Revoir Family & Friends!

Keith, Lindsey and I want to express our sincere thanks from all of you for the hundreds of letters, cards and emails pouring in from all over the globe.  We thank you for your friendship, love and support this past year and a half.  We appreciate you sharing all the stories some that we never heard before. It was obvious from them how Rich touched each of your lives in some way.  The kids and I won’t be coming back to the blog so if you want to stay in touch you can continue to share your stories with Keith’s or my email. Please remember Rich in this photo above, happy, healthy and riding his bike forever.  Ilana

Happy Easter

Viki made us a delicious Easter breakfast and topped it off with the best Lemon Meringue Pie we have ever tasted. The lemons picked fresh from her tree.

Helpers Today

Shane and Niels

The Guys Fight Night!

Niels, Rich, Chad and Keith watching the Pay Per View Fights.

Good Friends, Good Food, Good Conversation

And a lot of laughs with Terry and Maryann today.