Pastor Ed Dobson

Washington (CNN) – Ed Dobson is not afraid of dying. It’s the getting there that really scares him.

A former pastor, onetime Christian Right operative and an icon among religious leaders, Dobson has Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. When he was diagnosed, doctors game him 3 to 5 years to live.

That was 11 years ago.

Click here to read the entire article of this man’s journey.

Dr. Richard K. Olney dies of A.L.S.

Dr. Richard K. Olney with his beloved wife Paula

Dr. Richard K. Olney, a leading physician and pioneer in clinical research on amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease, died of the disease on Friday,  at his home in Corte Madera, Calif. He was 64.

His death was announced by the University of California, San Francisco, where Dr. Olney had been the director of the A.L.S. Treatment and Research Center before learning in 2004 that he himself had the disease.

Click here to read more about this extraordinary man, felled by an ironic twist of fate.

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